April levels....YEAH!

We just go back Kaden's levels from April 1st (ummm, yeah, its the 26th!!!). His homocystine was 2 and his methionine was 10. These numbers are below normal so the doc wants to up his protein/methionine allowance. His dietitian told us to up his diet 20-25 mg of methionine (equals 1 gm of protein) and go draw blood again in a week so we can see how Kaden does with the increase. So, We are going from 90mg to 110-115 mg! YEAH! I was able to give Kaden a whole piece of bread today for his PB & J sandwich for lunch :) This is big for me. I thought I would never be able to give him normal bread when we started this journey but he is amazing me.

**Side note of annoyance! Kaden's dietitians are wonderful, amazing, and knows their stuff but today I had some frustrations. She was telling me to up his MET to 90mg from 70mg. What?? We were already at 90mg and have been for two month. The other dietitian that changed his diet two months ago forgot to make a note! Really! I know these things happen but its my baby. So, I called the dietitian back and left a message that I'm going to give Kaden 110-115mg, if thats a problem, call me. **

Earth Day!

Today is Earth Day!!

Just wanted to post some pics of my green baby! We don't do much to be "green" but I do use cloth diapers (which is huge in my eyes), and turn off the water and lights as much as possible. Don't you just want to recycle after seeing this face?

Upon reflection yesterday....

Kaden is still acting like a terrible two year old (he is almost 18months)! We went on a grocery store tour yesterday and I was on my toes, running after him the entire time. By the end of the trip I was exhausted, annoyed, and ready to put Kaden down for a nap.

I finally got a few minutes to myself and started thinking about his behavior and how it's driving me crazy these days! Then a thought came to me. I'm happy he can run from me. I'm glad he can be mischievous and can find a way into anything. I'm glad he can talk back to express his feelings. With Kaden's disorder, I could be dealing with many more complications. He could be delayed, have vision or heart problems just to name a few. But, I'm blessed to say he body is responding very well to his diet and vitamins. I'm blessed to have a child that is developing normally and amazing his doctor along the way. He may not be "medically" perfectly healthy, but he is perfect in my eyes.

Some moms would do anything to have their child respond to them or their surrounding world. Some moms will never hear I love you, or get a hug from their child, and both my sons are able to. What more can I ask for? So, I decided I need to buck up, stop complaining and try to enjoy this stage since I'm luck enough to experience it with my son.

Bridgett

Just one of those days!

I created this blog as a therapeutic outlet for when I have days like today. I think, if pushed, I could of easily put my kids in daycare today and gone to work! (or out to lunch and shopping) Kaden is only 18 months but is seriously acting like a terrible 2 yr old! He now talks back (says no no to me with a pointed finger) and bites when he is frustrated and can't get his way. He has stopped listening to me all together and lives to the beat of his own drum.

Thanks goodness, I had a play date with good friends to calm down and vent. Nothing better then venting to another mom about your troubles and hearing that they have the same struggles! I love being a stay at home mom but some days I question it. I think stay at home moms should at least get a "Good Job" certificate every once in awhile for some validation.

This afternoon I'm going to create a count down until BOTH the boys are in school!!

Bridgett

What is MET??

I noticed that I use the term "MET value" a lot in my blog but don't really explain what that is. MET is short for methionine, which is an amino acid building block for protein. I know I talk about Kaden not processing protein but its really methionine he can't process. I count Kaden's daily methionine intake since its more accurate then just counting grams of protein. Each gram of protein is roughly 15-20 miligrams of MET and that is how I decide if Kaden can eat something by looking at the protein value on the label. Calculating MET is much more difficult since you can't find amino acid values on most food labels but I do have some resources from our WONDERFUL dietican that gives the MET value for a set portion of food.

This is why I calculate MET over protein....Food labels can trick you sometimes!!
EXAMPLES....

*One yoplait "gogurt" has 2 gms of protein, so that would be 40 MET points based on my guidelines from the dietician but it has over 200MET! K's MET points can't be over 90 each day. This food is definitely not allowed but from looking at the label I would think he could have one every once in a while if he is low on his protein allowance.

*One gerber cereal bar has 1gm of protein so I would calculate 20 points for the bar. But in my resourse book its only 12 points! That give Kaden 8 extra points for the day which is an extra snack. (8 points equal a cup of fruit or 4 wheat thins for example) If I was calculating protein, I wouldn't have "extra" points left over.

Thanks for reading my food science post! Hope your not sleeping by now, but this is my life.

Bridgett

back to counting points, UGH!

We were on vacation last week and I decided to give myself and Kaden a break. I decided not to bring his food journal or calculate MET values. I made a general menu for everyday we would be gone and brought everything needed to prepare the meals I planned. It took may hours of planning, three trips to two stores, but once it was planned and packed, we had a nice relaxing vacation. I planned meals that would allow extra snacks or cheating and keep his daily value around 60 MET since he is allowed up to 90MET. I loved being able to just feed him and not have to weight and count, I premeasured everything for "grab and go" meals. I will admit we didn't stay on the meal plan at every meal, and did allow some minor cheating with french fries but nothing that would make his levels go crazy. We all had a great vacation :)

Now its back to calculations! I found imitation cream cheese yesterday thanks to a friend so I have a new food item to play with for meal ideas. (thanks Leona)
Bridgett

I have amazing Friends!! Thanks...

I'm a member in a local Mom's Club. I signed up thinking I would maybe make some friends and have some activities to go to from time to time and that's about it. Five years later, I can say that this club has given me so much more then I could imagine. I have made AMAZING and SUPPORTIVE friends that are there to help me or my family in a second. I have been able to meet other moms who are dealing with dietary restrictions as well. We sit and talk about the struggles and great food finds we have found and share tips on non traditional cooking. Even the moms who don't have to cook specialty foods give suggestions and find foods for Kaden. I feel so blessed to have friends like this. They have helped me become the super mom I am today!
Thank you Queen Creek Moms Club!!
Bridgett