Thanksgiving Dinner-low protein style

I'm hosting Thanksgiving this year and with 7 days remaining until t-day I'm starting to think, "what is K going to eat?" I want him to feel like he is a part of every holiday and that he isn't getting a plate of some random-ness while everyone else is eating something entirely different.
Our Menu is..

• Turkey (none for K)
• Roasted potatoes
• Sweet potato casserole (none for K)
• Pan seared green beans
• Cranberry sauce
• Rolls (none for K)
• Pumpkin pie (none for K)

So, I think if I make him some bread and a dessert he should be able to have a nice thanksgiving meal just like the other family members. I have a great bread recipe from my Apples to Zuchinni cook book so that is taken care of. I also have a "ginger bread" recipe that would be perfect for a holiday dessert so I'll give that a try. If they turn out good, I'll have Christmas dessert already figured out! :) I'll let you know how the meal turns out and if I get a thumbs up from my baby K.

Happy 1st Birthday baby K!!

I just have to post some pictures from Kaden's first birthday. It was definitely a really fun, memorable party.

Halloween!

Kaden had a great halloween. Last year he was only 7 days old so this year was really like his first year! He went trick-or-treating with his brother, maw maw and myself. He gots lots of treats and, of course, lots of compliments on how adorable he was!! :) My dad and sister have labeled him as becoming a doctor when he gets older, soooo, naturally, he was a doctor for halloween.

Finally..some good numbers!!!

We got Kaden's lab back from early October and his homocystine is 18!! Whooohoooo! These are the lowest numbers yet! His methionine was a bit high, but his dietitian told us its a side effect of the cystadane and its nothing to worry about (in the 200's). So, three months later, we are finally in a good spot, for now. I never seem to get too excited since I never know what next month will hold.

BTW...Kaden has been so hard to feed lately!! This kid wants to live off fries and crackers! He will just scream in his chair until I give in, and give him what he wants. I don't know how a kid that can pretty much only eat fruits and veggies can go all day without one??! But he has managed to do it. I did get him to eat some tomatoes and zucchini tonight after adding salt and pepper to both and salad dressing to the tomatoes. I also made some low protein tortillas last night that he seems to like. They are really good! They look a bit white and transparent at first but once you taste them, they are yummy. I might try to bake some this weekend with some seasonings and make some chips! I know, I know, just what he DOESN'T need, anther chip to obsess over. They are so low, three equals 1 pt, so I don't even count them since he can barely eat one.
sigh....just trying to hang in there....

Kaden's First Birthday menu...

Kaden's first birthday is this Saturday (5 days away) and I have a big family luau planned. I can't believe its already been one year since I had him, it really flew by. As for the menu I have planned, I'm catering in Panda Express (chinese) since I have 35 people coming and I don't want to cook. The local hawaiian restaurant is not good so I figured chinese food is close enough :) Kaden should be able to eat a small portion of the fried rice and I'm going to make fruit and marshmallow kabobs (thanks for the idea Tammy) as well for him. As for his cake, I ordered a special mix online that is low in MET from myspecialdiet.com. Frosting is easy since he can eat the store bought "ready to use" stuff. I'm a bit surprised and confused, like always, with what is actually low in MET. As for the frostings, cream cheese flavor is the lowest! Um yeah, wouldn't it be high, its CHEESE! Anyway.....that is our frosting of choice since its MET free. Will post pics after the big event!!

Picky Eater! AGAIN!

Soooo, I jinxed myself by saying K is a great eater in the last post! I'm eating my words now. It has, yet again, been so hard to feed him lately. All he wants to eat are crackers and gerber "cheetos". He isn't eating baby food that good anymore but when I give his real food he acts like he doesn't know what to do with it and spits it out. I think I will have to step up my cooking skills and see if I can get him to start eating his veggies!! I have some squashes I got on sale that I'm going to play around with. Going to steam one and roast the other. Not sure if I should puree it or just cube it up for him. I"ll probably do both just to see what I can get him to eat! sigh.....

Cystadane update...

So far the addition of Cystadane to Kaden's treatment is going well. It's a powder substance that I add to his formula bottles three times a day. Its only a 1/8 teaspoon dose for the entire day so it doesn't seem to change the flavor of the "milk", he is still being a good boy and drinking all his bottles.

He really is getting adventurous with his diet and I'm excited about that. Last night for dinner he ate tomatoes and cucumbers from my subway sandwich. So cute! He is now able to drink out of a juice box which is the new fun thing! Today at MC Donald's he LOVED having sips from his juice box between fries! (I know he is to young for fries, but I have mother's guilt and give in). I also made some low protein bread last weekend that he likes toasted with jellies. I make cinnamon croutons with the last few stale slices last night and he gobbled it up for breakfast. (I could let the bread go to waste, so expensive and a bit of a pain to make).

He has been such a good eater lately and its been so nice!! I hear the boo boos now, gotta go!