August Level Update

So, we got Kaden's august blood draw levels and they were not good. Last month they were 111 and now 117, even higher (safe is under 60). I spoke with the doctor and we have changed his formula "cocktail" by decreasing similac and increasing Hominex. Hopefully this will bring his numbers back down to stable like they were in the spring. If not, we will have to start giving him Betaine, an amino acid that gets rid of homocystine in the blood. Many HCU patients are on Betaine and it is a naturally occuring product but K's doctor is wanting to hold off on if if we can. So, back to the drawing board for treatment......