Wednesday, December 16, 2009
Wednesday, November 18, 2009
Our Menu is..
- Turkey (none for K)
- Roasted potatoes
- Sweet potato casserole (none for K)
- Pan seared green beans
- Cranberry sauce
- Rolls (none for K)
- Pumpkin pie (none for K)
So, I think if I make him some bread and a dessert he should be able to have a nice thanksgiving meal just like the other family members. I have a great bread recipe from my Apples to Zuchinni cook book so that is taken care of. I also have a "ginger bread" recipe that would be perfect for a holiday dessert so I'll give that a try. If they turn out good, I'll have Christmas dessert already figured out! :) I'll let you know how the meal turns out and if I get a thumbs up from my baby K.
Tuesday, November 3, 2009
BTW...Kaden has been so hard to feed lately!! This kid wants to live off fries and crackers! He will just scream in his chair until I give in, and give him what he wants. I don't know how a kid that can pretty much only eat fruits and veggies can go all day without one??! But he has managed to do it. I did get him to eat some tomatoes and zucchini tonight after adding salt and pepper to both and salad dressing to the tomatoes. I also made some low protein tortillas last night that he seems to like. They are really good! They look a bit white and transparent at first but once you taste them, they are yummy. I might try to bake some this weekend with some seasonings and make some chips! I know, I know, just what he DOESN'T need, anther chip to obsess over. They are so low, three equals 1 pt, so I don't even count them since he can barely eat one.
sigh....just trying to hang in there....
Monday, October 19, 2009
Thursday, October 1, 2009
He really is getting adventurous with his diet and I'm excited about that. Last night for dinner he ate tomatoes and cucumbers from my subway sandwich. So cute! He is now able to drink out of a juice box which is the new fun thing! Today at MC Donald's he LOVED having sips from his juice box between fries! (I know he is to young for fries, but I have mother's guilt and give in). I also made some low protein bread last weekend that he likes toasted with jellies. I make cinnamon croutons with the last few stale slices last night and he gobbled it up for breakfast. (I could let the bread go to waste, so expensive and a bit of a pain to make).
He has been such a good eater lately and its been so nice!! I hear the boo boos now, gotta go!
Saturday, September 19, 2009
I'm a bit nervous about cystadane, I don't know why. There are no side effects besides tummy aches and nausea but I hate giving my kids any kind of drug I'm not familiar with. Most people with HCU do end up on cystadane at some point, haven't meet someone not on it, but usually not until 2-3yrs of age. Kaden is only 10months and we weren't able to control his levels with food and formula alone, not good in my eyes.
Sunday, September 13, 2009
Thursday, September 3, 2009
To get started all I bought was a three ring binder, pencil pouch, and a folder with pockets that will fit in the notebook. This all cost about $3 at walmart! I used microsoft word to create the tables for my "reference" pages and the daily/monthly logs. I like the daily log so I can see exactly what he has eaten all day and the monthly log to get an overview of his intake that month and how it may have affected his homocystine number. Also, when my husband comes home he doesn't have to ask, "how many points does he have left", "did he take his vitamins", he can just look in the book and pick up where I left off. At the bottom of the daily log I made a box for vitamins and formula since these need to be tracked daily as well. The vitamin box I just check when he has taken them, and the formula box I check when he has drank all of the mandatory formula. The dash and second number in the formula box is any extra hominex (medical formula) he has drank that day in ounces (the "H" is for hominex).
The first picture is his daily chart. I made three columns so I can track what the food is, how much he ate (I prefer to use a gram scale to weigh portions) and how many MET was in the serving. There are also rows for subtotals after each meal and a total for the end of the day. You can also see the formula and vitamin box I was talking about earlier. The second picture are common foods my son eats and the MET per 1gm of that food. The third picture is the same type of page as the second, but is MET count of baby foods. I also have one more page that is just the same that has dairy, grains, frozen foods, etc that my son likes. I like these kinds of reference pages. After totaling how many grams he ate of a certain food, I just multiple it by the MET/1 GM number off one of the three pages that are right next to the daily sheet to get the total MET for that portion that he ate.
This last picture is Kaden's MET intake for the month sheet. I just made a table so at a glance I can see what his MET intake was for each day of the month. It's to hard to flip though the pages when the dietician asks you questions about MET intake. "Was MET intake high, low, is he satisfied with the MET allotted", etc. It also lets me know how I did for the month at calculating his meals and did I keep them in range. Did I go over alot, was I too low, do I need to alter some portions.
So, this is Kaden's food bible. I take it with me on vacation, to all the doctor appointments and I really like the organization it gives me. I have everything on hand at a glance, it easy to access, and so far it has been great.
Saturday, August 22, 2009
Thursday, August 20, 2009
These have been his values:
June 8, 2009
May 3, 2009
As you can see we were doing great until July! That month, I stopped breastfeeding and introduced similac. We also increased his protein intake since his numbers had been so good. We added more hominex to his diet, and deceased his similac and protein intake to try to get his numbers back down. We will be getting August values soon, so fingers crossed they are good!!